GFF is heavily involved in the set up of the Virus Outbreak Data Access Network (VODAN). This GO FAIR Implementation Network will focus on making the SARS CoV-2 virus data FAIR, meaning that they are Findable, Accessible, Interoperable and thus Reusable by both humans and machines. The FAIRification will initially focus on the Clinical Research Form (CRF) model following the WHO standards. Multiple IN partners will create input forms that make it easy for local caregivers to create FAIR-CRF data in real time as a first step. As a second step, localized FAIR Data Points (FDP) will be set up via online work sessions. These FDP will host the FAIR data, thereby making it possible for algorithms to visit the data with a specific question. The data never leaves the FDP, but rather get visited by algorithms to answer questions and discover patterns in these data. This approach is already put to practise in several Personal Health Train (PHT) projects.
ZonMw funded project
GFF was asked by Dutch funder ZonMw to lead a project to test the PHT method in a small pilot, using real world observation COVID -19 data from at least two countries affected by the virus, please see https://www.zonmw.nl/nl/actueel/nieuws/detail/item/start-datanetwerk-coronavirus/ (in Dutch).
The project ended in July, and generated very succesfull outcomes.
VODAN Africa, funded by the Philips Foundation
Furthermore, the GO FAIR Foundation, Kampala International University and the Philips Foundation have teamed up in an effort to enable distributed access to the critical data needed from Africa to fight and contain the COVID-19 pandemic. Until now, these VODAN FAIR Data points have been installed on the African continent.
VODAN in a Box
The VODAN in a Box toolset was developed in these two projects. VODAN in a Box allows the VODAN semantic model based on the WHO CRF file, the FAIR Data Point software, a dedicated VODAN Data entry wizard, and search/query functionality that enables to query multiple FDP’s for numbers of patients with a specific characteristic, in one user friendly solution. VODAN in a Box makes instalment of a VODAN FAIR Data Point easy.
We have created several resources to help you along in your VODAN FAIR data projects.
the GO FAIR FOUNDATION
Poortgebouw N-01, Rijnsburgerweg 10
2333 AA LEIDEN, the Netherlands