Spring 2020 Dutch funder ZonMw commissioned the GO FAIR initiative to lead a project on making SARS CoV-2 virus data FAIR, meaning that they are Findable, Accessible, Interoperable and thus Reusable by both humans and machines. To achieve this a GO FAIR VODAN (Virus Outbreak Data Access Network) Implementation Network was started. Until now, over 200 people from all over the world have joined this network. The goal of VODAN is making SARS CoV-2 virus data FAIR (Findable, Accessible, Interoperable and Reusable, both for machines and for humans). As a result, real world COVID-19 patient data is available for research, under well-defined conditions and with patient privacy well protected. Besides the funding of ZonMw the GO FAIR Foundation also received funds from the Philips Foundation, with the specific aim to set up a VODAN infrastructure on the African continent (VODAN Africa).
Opening up COVID-19 patient data via FAIR Data Points
End July 2020 marks the end of the ZonMw funded VODAN project. A proof of concept of a working VODAN infrastructure was demonstrated, and the VODAN in a Box tool was deployed.
The VODAN infrastructure is made up of a number of components:
It is important to stress that sensitive patient data NEVER leaves the FDP, the hospital or the country, without the permission of the custodian.
The VODAN in a Box toolset contains the VODAN semantic model based on the WHO CRF file, the FAIR Data Point software, a dedicated VODAN Data entry wizard, and search/query functionality that enables to query multiple FDP’s for numbers of patients with a specific characteristic, in one user friendly solution. VODAN in a Box makes instalment of a VODAN FAIR Data Point easy.
We have created several resources to help you along in your VODAN FAIR data projects.
the GO FAIR FOUNDATION
Poortgebouw N-01, Rijnsburgerweg 10
2333 AA LEIDEN, the Netherlands